advocacy

#BCSM: Like Epinephrine at 2100

by Nursetopia on June 18, 2013

Sure, you might be reading this at any hour of the day, but at my present writing time, I just finished an invigorating discussion with the amazing #BCSM community via Twitter. We specifically discussed nurses’ role in oncology care, and it was lovely to see the diversity of thought and the perspectives on nurses and nursing.

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My. Head. Is. Swimming. I’m dreaming up dreams and thinking about people and ideas and patient care and…The chat ended at 9 PM Central Time, which is 2100 in military time, which is what we use in healthcare, as well, for all the non-clinical Nursetopia readers.

Adrenaline is pumping through my veins. I feel it. I’m invigorated. That’s the power of connection with like-minded people, passionate people, world-changers, dreamers, and doers. It’s like a jolt of epinephrine at 2100.

I think I need a run or something. Thanks, #BCSM!

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Congrats, Tavenner!

by Nursetopia on May 16, 2013

Congratulations, I think, to Marilyn Tavenner, a former nurse and hospital executive, on her U.S. Senate confirmation May 15, 2013, to lead the Centers for Medicare and Medicaid Services (CMS). She has served as the acting administrator of CMS since late 2010, and she is the first permanent leader of CMS since 2006.

I’m not sure her work changes at all – except for maybe having to stop justifying that she can do the job and just get on with it. There is, indeed, much work. Best wishes to Tavenner and her team as they implement the Affordable Care Act and attempt to reinvent CMS services.

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Here’s a sampling of my informal reading this week:

What articles in the hydrant-force information stream caught your attention this week?

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Are You Perpetuating Cancer Myths?

by Nursetopia on February 4, 2013

WCD_Logo_RGB_2012Today is the Union for International Cancer Control‘s (IUCC) World Cancer Day. A lot of myths surround cancer. As healthcare professionals, it is our duty to help dispel these myths. Often, though, we are part of the perpetual myth-movement, standing silently by the wayside.

Are you perpetuating or dispelling the cancer myths?

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2013 Health Care Crystal-Ball-Gazing

by Nursetopia on January 23, 2013

Go ahead – pick up the crystal ball. Take a look at what 2013 holds or may hold for health care.

Two organizations have already laid out their thoughts on the next year in healthcare. Medscape’s slideshow is quick and easy to follow, and Modern Healthcare reporters present several videos highlighting topics.

Do you agree? What do you think will happen in your healthcare neck ‘o the woods this year?

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‘Don’t Give Up. Don’t Ever Give Up.’ -Jimmy V.

by Nursetopia on November 29, 2012

It’s Jimmy V Week. It’s okay if it’s new to you; it was new to me. My husband actually educated me on it and the namesake of the Jimmy V. Foundation for Cancer Research – Jimmy Valvano. Apparently there was even a made-for-TV movie about Jimmy V., his life, and his legacy. (I apologize to all the ESPN watchers, sports fans, and made-for-TV movie lovers…my husband was just as disgusted at my lack of knowledge.)

Jimmy Valvano started his basketball coaching career at Rutgers University, and he coached the North Carolina State University basketball team, the clear underdog, to the 1983 NCAA championship against the Houston Cougars, 54-52. Jimmy was diagnosed with cancer – metastatic adenocarcinoma of unknown origin – at the age of 46. His 1993 ESPY speech is as inspirational as it gets. He passed away weeks after that speech but not without first forming the Jimmy V. Foundation for Cancer Research with the help of ESPN, which provides funding for translational cancer research. According to their website, the Jimmy V. Foundation has granted more than $90 million in grants to researchers.

Reading more about Jimmy V. inspired me. He made my day because I definitely laughed, thought, and cried. I hope the same for you today. Remember his words.

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Nurses’ Role in Voting – Past and Present

by Nursetopia on November 5, 2012

Yes, I know everyone in the U.S. is ready for election season to end. I haven’t mentioned it once, though…until today. With tomorrow’s Election Day home stretch, I have to encourage everyone to vote if you haven’t done so already.

I cannot imagine living in a time when I could not cast my vote. I owe my right to many, many people – men and women, including nurses. Yes, nurses. Numerous state nursing associations formed before women’s suffrage, so as the movement progressed, there were already large groups of women – nurses – organized to aid in the effort. And they did. Nurses like Louisa May Alcott, a Civil War nurse most widely known as a distinguished American novelist; Sarah Tarleton Colvin, a graduate of Johns Hopkins and a Red Cross nurse; and Lavinia Lloyd Dock, a visiting nurse to the poor and the author of the first nursing drug book, among many others, fought for women’s right to vote, even enduring imprisonment. And let’s not forget it was many of these women who also fought for equality in nursing, giving men the opportunity to join the nursing workforce as respected professionals.

Don’t take the right to vote for granted. No matter your political belief, cast your ballot and celebrate your voice. Voting for the President of the United States should be the tip of proverbial iceberg of U.S. nurses’ political and advocacy involvement.

Vote!

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Even When Your Voice Shakes

by Nursetopia on October 23, 2012

This quote always inspires and comforts me. American activist Maggie Kuhn has some fiercely poignant messages. She fought ageism and advocated for mental health issues. She was one powerhouse Presbyterian. She stood toe-to-toe with policymakers, change agents, and influencers, advocating for those who could not or would not do so for themselves.

I hope you remember her encouragement the next time you think, “Maybe I should say something…next time…”

You can download this reminder here.

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Living in Austin, Texas, global headquarters for LIVESTRONG, and working in the oncology care community, the recent events surrounding Lance Armstrong is big news. I honestly have not thought a lot about the controversy since news broke, but a 12-mile run at a local YMCA gave me plenty of time and visual fodder to think through the noise.

Headphones in, sweating away, and I see a dear and familiar face on the television screen in front of me. Jonny Imerman, a cancer survivor and founder of the amazing Imerman Angels, a nonprofit providing free, one-on-one cancer support to people all across the globe, was selected as a CNN Hero. There’s no one else more perfect for that title than Jonny, who has connected cancer survivors and patients in more than 65 countries. The television feature showed a few familiar photos of Jonny like the one where he attended the LIVESTRONG Global Summit three years ago, further spreading the vision of Imerman Angels. Not too long ago Imerman Angels became a formal partner with LIVESTRONG to connect patients with support services as they call the LIVESTRONG Cancer Navigation Center.

Oddly enough, the very next seconds on CNN were occupied with a discussion about Lance Armstrong banned from cycling with LIVESTRONG images catapulting from the screen.  The spot didn’t last long, and I caught myself laughing at the juxtaposition of the back-to-back features. I looked around. Yellow LIVESTRONG bands were everywhere. LIVESTRONG Austin Half-Marathon and Marathon runner and medical staff shirts bounced on the treadmills in front of me, and the LIVESTRONG at the Y program flyers encouraged participation on the wall behind me.

LIVESTRONG means many things to me as an oncology nurse. I have personally referred patients, friends, and family members to the LIVESTRONG Cancer Navigation Center, Imerman Angels, LIVESTRONG at the Y, and many other LIVESTRONG services and partners like Planet Cancer, Sharing Hope, and the Patient Advocate Foundation. I have witnessed the life-changing and life-saving impacts of each of these programs and services.

Am I biased? Absolutely. LIVESTRONG has poured time, effort, and money into me professionally as a nurse. They’ve done the same for you. I am not an employee of LIVESTRONG, but I am extremely proud of the work I’ve done with them and the Nurse Oncology Education Program to reach literally thousands of nurses and other healthcare professionals about adolescent and young adult cancer and now cancer in the Hispanic/Latino population, a new continuing nursing education video which will release soon. LIVESTRONG has done the same kind of education and resource-creation for physicians, educators, community leaders, and community health workers, as well.

LIVESTRONG cares about people impacted by cancer. That means they care about nurses and the millions of providers worldwide who care for the 28 million people globally living with cancer.

I have never personally met Lance even though I’ve seen him many times at events and in and around Austin, where he’s done incredible work for the city, local healthcare organizations, and cyclists as well as other health-conscious folks. As much as Lance Armstrong has done, LIVESTRONG is more than Lance Armstrong. It’s about life – your life, my life. With 1 in 3 Americans developing cancer in their lifetime and cancer as the leading cause of mortality with 7.6 million deaths worldwide, we all need an organization like LIVESTRONG, one that works alongside grassroots to global organizations to impact health in our communities and around the world. LIVESTRONG makes a difference for people impacted by cancer. LIVESTRONG makes a difference for healthcare professionals. LIVESTRONG makes a difference for our patients. LIVESTRONG makes a difference for you.

That won’t ever change. LIVESTRONG.

Full disclosure: I worked as the program director for the Nurse Oncology Education Program (NOEP) for almost five years in which I worked closely with LIVESTRONG to educate nurses in all fields of practice about their role in cancer prevention, detection, treatment, and survivorship care. I continue to work with NOEP and LIVESTRONG on continuing nursing education activities, the most recent one scheduled to release on August 29, 2012. I did not receive remuneration to write this post. These are the opinions and thoughts of a masters-prepared oncology certified nurse in clinical practice and a person whose family is impacted by cancer. 

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The Responsibility of the Lone Nurse

by Nursetopia on May 2, 2012

"number 1" by Leo Reynolds via Flickr

Often individual nurses are placed in situations, in meetings, and on committees where s/he is the only nurse. Maybe it’s purposeful by the power-hungry/hoarding nurse or by others needing a “token nurse” (e.g. “We need at least one nurse on this project/board/committee.”) Maybe there is really only room for one nurse on the project. RWJF points out nurses are underutilized in the boardroom and should be included on any and every committee, bringing a different, trusted perspective. If the choice is no nurse or one nurse, always – one nurse.

Lone nurses are common. I’ve been there – at the table, looking around, and suddenly realizing, “Oh shoot. I’m the only nurse here!”

Suddenly the pressure on that single nurse becomes great. The voice of nursing resides with that lone nurse. She must be aware of the nursing issues and voices around her. He could bring other nurses into the mix by referring to them, gaining feedback from them, and inquiring thoughts from them. The lone nurse doesn’t have to be a single voice. She can also be the amplifier of many other voices, bringing the powerful, diffuse energy together into a distilled, focused current of laser-sharp decisions.

Uncle Ben’s words to Peter Parker/Spiderman ring true for nurses, as well: With great power comes great responsibility. The choice is yours.

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